Massachusetts Family-to-Family Health Information Center
Funding for this project is provided by a grant from the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs. The funding was made available through the Patient Protection and Affordable Care Act (ACA).
GOALS: To assist families in making informed choices about care for their children and youth with special health care needs so they will be:
- More knowledgeable about health care services and supports
- Better able to access services and supports
- More satisfied with the services their child and family receives
- More effective partners in decisionmaking with health care providers, other providers, systems of care, and with policy makers
- Better advocates
SERVICES: The Family-to-Family Health Information Center:
- Provides free technical assistance about health care, public benefits and other health care financing options
- Provides referrals to programs designed to help children & youth with special health needs remain in the community
- Provides other resources as requested
- Maintains a webpage with a calendar of events, workshop catalogue, resources and other announcements
- Conducts workshops about public benefits
- Partners with other grassroots parent organizations throughout the state to create opportunities for parent/professional partnerships
- Collaborates with others to address barriers to health care and participates in opportunities to improve systems of care for children and youth with special health care needs.
SUPPORTS: The Family-to-Family Health Information Center:
- Hosts the annual Joining Voices Conference, a day of networking and learning for families with children & youth with special health needs
- Hosts Topical Conference Calls about health care services and supports so families have alternative learning opportunities
- Runs a statewide listserv where families with children & youth with special health needs and their professional partners can share information and resources, ask questions and learn from each other’s collective expertise.